PLATINUM2024

Parkinson's Foundation

Better Lives. Together.

New York City, NY   |  http://www.parkinson.org

Mission

The Parkinson's Foundation makes life better for people with Parkinson's disease by improving care and advancing research toward a cure. In everything we do, we build on the energy, experience, and passion of our global Parkinson's community.

Notes from the nonprofit

The Parkinson's Foundation was formed by the merger of the National Parkinson Foundation (NPF) and the Parkinson's Disease Foundation (PDF), both established in 1957, with offices in New York and Miami. Connect with us today. We are here to help. Miami Office: 5757 Waterford District Drive Suite 310 Miami, FL 33126 New York Office: 1359 Broadway Suite 1509 New York, NY 10018 Contact our toll-free Helpline at 1-800-4PD-INFO (473-4636) or [email protected]. Local chapter information can be found at: https://www.parkinson.org/get-involved/local-resources

Ruling year info

1959

President and CEO

Mr. John L. Lehr

Main address

1359 Broadway Rm 1509

New York City, NY 10018-7867 USA

Show more contact info

EIN

13-1866796

NTEE code info

Neurology, Neuroscience (G96)

IRS filing requirement

This organization is required to file an IRS Form 990 or 990-EZ.

Sign in or create an account to view Form(s) 990 for 2024, 2023 and 2022.
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Communication

Programs and results

What we aim to solve

SOURCE: Self-reported by organization

More than one million Americans are living with Parkinson's disease (PD), 90,000 more are diagnosed annually. People with Parkinson's can live decades with the disease. That is why the Parkinson's Foundation is accelerating our funding for research that will ultimately find the cause of Parkinson's and develop methods to treat and manage it.

Our programs

SOURCE: Self-reported by organization

What are the organization's current programs, how do they measure success, and who do the programs serve?

International Research Grants Program

The program is designed to promote innovative research that has a high potential to significantly advance the knowledge of Parkinson's disease (PD) but little likelihood of securing funding through more traditional sources. By supporting novel, "high risk/high reward" research, the goal of the grant is to enable investigators to demonstrate the feasibility of their ideas while generating data necessary for the support of future funding. The program provides a maximum of $75,000 in direct costs per year for two years.

Population(s) Served

Grants are awarded to selective research groups for emphasizing research on Parkinson's and related disorders. Recipients are funded based on continuing excellent performance, accredited by peer review from the foundation's Scientific Advisory Board. The foundation looks for innovative, pioneering work that advances the understanding and treatment of Parkinson's disease. Evidence of notable contributions to science is also obtained by the quality of the center's research publications, and the receipt of grant support from other sources

Population(s) Served

For young clinicians who have completed their neurology residency and are seeking clinical research experience, the foundation offers the Postdoctoral Fellowships for Clinical Neurologists, one-year awards in the amount of $55,000 (to be used as salary).

Population(s) Served

Awards are available, for up to $40,000 per year, to help enable young scientists, fresh from their residencies, to study at a major research institution for one or two years. Fellows may receive sponsorship for up to two years in any one project but would need to apply for each award year following the same guidelines as new applicants. In instances where the researcher would want to file a consecutive application for fellowship, a preliminary report of the current research would be due along with the new application. The applicant must have completed a Ph.D. or M.D. and identify a research mentor who will serve as mentor for the fellow and supervisor of the research

Population(s) Served

Summer student fellowships are used to support students from advanced undergraduate to medical students in the pursuit of Parkinson's-related summer research projects. Typically fellowships are offered for ten weeks of clinical or laboratory work with an award of $4,000. The award is to be used to support the student's summer research, to defray tuition costs of research credits or to supplement living/housing costs.

Population(s) Served

Awarded in conjunction with the Melvin Weinstein Parkinson's Foundation, these grants provides emergency funding to people with Parkinson's disease for such costs as vital home adjustments and medical equipment (including wheelchairs, walkers, and canes)

Population(s) Served

The foundation and the American Brain Foundation collaborated to create this award to support mutual interest in training outstanding residency-level clinicians in the field of Parkinson's disease. Successful applicants will receive a three-year award that consists of an annual salary of $75,000 plus $5,000 in educational expenses per year to support three years of research training in an environment where talented young clinicians address problems in Parkinson's disease with the most current scientific tools. It is expected that upon completion of the program, participants will be committed to a research or combined clinical/research career in PD and will be in line to direct robust research programs relevant to PD. Eligible applicants must hold an M.D., D.O., or equivalent clinical degree from an accredited institution, and must have completed residency training but be less than seven years from completion of residency when funding begins

Population(s) Served

These fellowships award up to $50,000 per year for up to two years to support young scientists, fresh from their residencies, to study at a major research institution for one or two years. Applicants must have completed a Ph.D. or M.D. and identify a research mentor who will serve as a mentor of the fellow and supervise research

Population(s) Served

Grants and fellowships to address the etiology, pathogenesis, and treatment of Parkinson's disease

Population(s) Served

Today, only 10% of people diagnosed with Parkinson’s in the United States are receiving the best care. That is unacceptable. The Parkinson’s Foundation is accelerating its efforts to address this inequity so people with Parkinson’s get the care they need, wherever they live. Providing state-of-the-art care through our global network To ensure the best care and consistency of treatment for Parkinson’s patients, the foundation has certified 42 premier treatment and research centers worldwide. These Centers of Excellence are renowned for outstanding performance in Parkinson’s research, care and outreach. Over the next few years, we will significantly increase the number of Centers of Excellence in the network, greatly expanding our overall coverage, and facilitate innovative solutions like telemedicine care to reach the 90% of people who are not receiving care from trained specialists. Training professionals to provide expert care Responding to a nationwide shortage of trained specialists, we are closing the gap in PD professional training by educating physicians, nurses, physical therapists, occupational therapists, speech language therapists and social workers. The next generation of healthcare professionals must be equipped with the knowledge and skills necessary to provide comprehensive care with a focus on the specific needs of individuals living with PD.

Population(s) Served
Adults
Caregivers

Funding the best and brightest scientists to help us The most innovative ideas and creative research initiatives often come from new investigators. The foundation currently invests nearly $10 million annually in the most promising research. Not only are we working to understand the cause and progression of Parkinson’s, we are also attracting talented scientists to a career in Parkinson’s research and funding more investigators to start careers working on Parkinson’s. Investing in new frontiers and discovery We identify and address the unmet needs of people with PD by driving cutting-edge research. Our research agenda includes studying the genetic factors, environmental factors and the gut-brain connection, where PD may originate. We must continue to provide crucial funding to innovative scientists and groundbreaking research. Assembling the largest clinical study of Parkinson’s The Parkinson’s Outcomes Project is the largest and most comprehensive Parkinson’s clinical study ever undertaken. Our work provides researchers and physicians with a comprehensive view of the disease and its overall impact on people’s lives. The study follows more than 10,000 patients in four countries. We will continue to enroll even more participants to track changes over time and establish a “gold standard” for treating Parkinson’s patients. Through this study, we have shared key findings on the importance of being screened for depression annually and engaging in 2.5 hours of exercise per week for a better quality of life.

Population(s) Served
Adults
Families

The Parkinson’s Foundation toll-free Helpline, with the capacity to respond to both English and Spanish speaking callers, provides critical information to people living with PD, caregivers and family members. The Helpline also allows us to alert the community about important research findings, medicine shortages, adverse drug interactions and much needed advice—in real time. Our team of highly-trained Parkinson’s specialists speak with nearly 30,000 people annually. In the coming year, we will expand the hours of the Helpline to better serve the Parkinson’s community and offer support in more languages. We help people live well with PD by providing families with free resources including: our life-saving hospitalization kit, “Ask the Doctor” online forums, educational books, videos, webcasts and smartphone apps. These tools empower people living with PD to be more involved with the management of their disease and improve their quality of life. The Parkinson’s Foundation puts people living with the disease first. We are the first organization to train people with PD to partner with scientists on research and to form a national advisory council of people with Parkinson’s to ensure more efficient and effective research.

Population(s) Served
Adults
Caregivers

Where we work

  • Canada

  • Israel

  • Netherlands

  • United Kingdom

  • United States

Our results

SOURCE: Self-reported by organization

How does this organization measure their results? It's a hard question but an important one.

Number of clients served

This metric is no longer tracked.
Totals By Year
Related Program

Ensuring Better Care for Everyone

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

Centers of Excellence patients, Moving Day participants, Parkinson's Outcomes Project participants, Professional Education trainees, researchers funded, digital outreach via email and website.

Number of overall donors

This metric is no longer tracked.
Totals By Year
Related Program

Ensuring Better Care for Everyone

Type of Metric

Input - describing resources we use

Direction of Success

Increasing

Total dollar amount of grants awarded

This metric is no longer tracked.
Totals By Year
Related Program

Understanding Parkinson’s through Research

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

$474,000,000 invested in Parkinson's research and care since 1957

Number of unique website visitors

This metric is no longer tracked.
Totals By Year
Related Program

Educating and Empowering the Parkinson’s Community

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Context Notes

7.7 million visited Parkinson.org, the go-to Parkinson's resource, in 2024

Number of volunteers

This metric is no longer tracked.
Totals By Year
Related Program

Educating and Empowering the Parkinson’s Community

Type of Metric

Output - describing our activities and reach

Direction of Success

Increasing

Our Sustainable Development Goals

SOURCE: Self-reported by organization

Learn more about Sustainable Development Goals.

Goals & Strategy

SOURCE: Self-reported by organization

Learn about the organization's key goals, strategies, capabilities, and progress.

Charting impact

Four powerful questions that require reflection about what really matters - results.

The Parkinson's Foundation makes life better for people with PD by improving standards of care and advancing research toward a cure. We are rallying researchers, physicians, clinicians, therapists, people with Parkinson's and their families in support of the entire Parkinson's community.

Foundation-supported scientists are working aggressively to identify the underlying mechanisms of the disease—a critical initial step to developing new therapies and treatments. Only by knowing how PD works within the brain and throughout the body can we develop new drugs that prevent, stop or ultimately cure the disease.

For those currently struggling with Parkinson's, it is imperative that we make progress today. The Parkinson's Foundation is the leader in ensuring better medical care; educating and empowering the Parkinson's community; and driving the understanding of Parkinson's through research. These guiding pillars of our work will allow us to take a chronic, degenerative disease and give people hope of independence and quality of life.

As a national organization with a local presence and impact, the Parkinson's Foundation brings help and hope to the estimated one million individuals in the United States, 10 million worldwide, who are living with Parkinson's.

Ensuring Better Care for Everyone
• The Parkinson's Foundation sets standards for expert Parkinson's care through its global network of 54 Centers of Excellence.
• The Foundation improves the quality of life for people with PD by tracking the care that they receive at its centers. Nearly 10,000 patients are enrolled in the Parkinson's Outcomes Project, the largest clinical study of PD. According to the Foundation's study, regular Parkinson's treatment from a neurologist could save thousands of lives each year.
• The Foundation is working to close the gap in Parkinson's professional training by educating nurses, physical therapists, occupational therapists, speech language therapists and social workers so they can provide better care.

Educating and Empowering the Parkinson's Community
• The Parkinson's Foundation educates and empowers people with PD through its national network of staff and volunteers. The foundation was the first organization to form a Parkinson's advisory council and the first to train people with PD to partner with scientists on research.
• The Parkinson's Foundation helps people live well with PD by providing free resources including: educational books, webinars, podcasts, a life-saving hospitalization kit, and the toll-free Helpline, staffed by Parkinson's specialists who answer nearly 30,000 calls annually.
• The Parkinson's Foundation brings local communities together through Moving Day®, A Walk for Parkinson's, a national grassroots event that has raised $14 million to support Parkinson's research and local wellness programs across the country.

Understanding Parkinson's through Research
• The Parkinson's Foundation invests millions of dollars annually in promising scientists who are on a mission to understand the basic mechanisms of Parkinson's that are critical to developing new treatments and medications.
• The Parkinson's Foundation recruits the most talented minds in Parkinson's research by supporting early career scientists in neurology who might choose other fields of study.
• The Parkinson's Foundation identifies and addresses the unmet needs of people with PD by driving cutting-edge research on a wide range of patient-driven topics.

The challenges of living with Parkinson's disease, improving care and finding a cure can seem overwhelming. No individual or group can go it alone.

We are the Parkinson's Foundation. A community. An alliance. A movement. Where people living with Parkinson's, families, caregivers, scientists, advocates, donors and volunteers join forces to improve lives and advance toward a cure

For over half a century, we've made tangible progress on all fronts, from the largest clinical study of Parkinson's ever, which has significantly improved care, to breakthrough treatments. Today, we continue to:

-Provide life-changing support to people living with Parkinson's and their caregivers
-Fund game-changing research on treatment and care
-Convene the best minds from every corner of the global Parkinson's community to find new approaches that enhance care and move us closer to a cure.

Everything we do is based on experience and informed by facts. The people we serve deserve nothing less than the highest level of support based on validated research and deep encouragement grounded in reality. Our donors and volunteers need to know that we are 100% accountable. This is why we focus on verifiable outcomes, not vague promises.

In partnership with the entire Parkinson's community, we are making a real difference in people's lives. And we have the research, the data – and the stories – to prove it. This is what happens when we all pull together as one global, determined and inspired movement. Better Lives. Together.

How we listen

SOURCE: Self-reported by organization

Seeking feedback from people served makes programs more responsive and effective. Here’s how this organization is listening.

done We demonstrated a willingness to learn more by reviewing resources about feedback practice.
done We shared information about our current feedback practices.
  • How is your organization using feedback from the people you serve?

    To identify and remedy poor client service experiences, To identify bright spots and enhance positive service experiences, To make fundamental changes to our programs and/or operations, To inform the development of new programs/projects, To identify where we are less inclusive or equitable across demographic groups, To strengthen relationships with the people we serve, To understand people's needs and how we can help them achieve their goals, To understand people's needs and how we can help them achieve their goals

  • Which of the following feedback practices does your organization routinely carry out?

    We collect feedback from the people we serve at least annually, We take steps to get feedback from marginalized or under-represented people, We aim to collect feedback from as many people we serve as possible, We take steps to ensure people feel comfortable being honest with us, We look for patterns in feedback based on demographics (e.g., race, age, gender, etc.), We look for patterns in feedback based on people’s interactions with us (e.g., site, frequency of service, etc.), We engage the people who provide feedback in looking for ways we can improve in response, We act on the feedback we receive, We share the feedback we received with the people we serve, We tell the people who gave us feedback how we acted on their feedback, We ask the people who gave us feedback how well they think we responded

Financials

Parkinson's Foundation
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Operations

The people, governance practices, and partners that make the organization tick.

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Connect with nonprofit leaders

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lock

Connect with nonprofit leaders

Subscribe

Build relationships with key people who manage and lead nonprofit organizations with GuideStar Pro. Try a low commitment monthly plan today.

  • Analyze a variety of pre-calculated financial metrics
  • Access beautifully interactive analysis and comparison tools
  • Compare nonprofit financials to similar organizations

Want to see how you can enhance your nonprofit research and unlock more insights? Learn More about GuideStar Pro.

Parkinson's Foundation

Board of directors
as of 1/31/2025
SOURCE: Self-reported by organization
Board chair

Howard Morgan

Partner and Senior Managing Director, Argand Partners

Adam Wolfberg BOARD MEMBER

Albert Dosal

Chairman and CEO of Dosal Capital

Alessandro Di Rocco

Founders Professor of Neurology and Chief, Division of Movement Disorders, Director, The Marlene and Paolo Fresco Institute for Parkinson’s and Movement Disorders (a National Parkinson Foundation Cent

Alessandro Di Rocco BOARD MEMBER

Alison Herman BOARD MEMBER

Andrew Albert

Managing Director and Operating Partner of Svoboda Captital Partners, LLC

Andrew B Albert VICE CHAIR

Arlene Levine

Chair of the Fund for Women and Girls Philanthropic Breakfast of the New York Community Trust of Westchester County

Christina Weaver Jackson BOARD MEMBER

Constance W Atwell SECRETARY

Constance Woodruff Atwell

Former Director of the Division of Extramural Research at NIH/NINDS

G Pennington Egbert BOARD MEMBER

G. Pennington Egbert

Managing Director, Co-Director of Americas Equity Research at Goldman Sachs

Gail Milhous

Private philanthropist and community activist

Gregory Romero

Vice President of KE Tube, Inc.

Guido Goldman

Director of the Program for the Study of Germany at the Minda de Gunzburg Center for European Studies of Harvard University

Howard D Morgan IMMEDIATE PAST CHAIR

Howard Morgan

Partner and Senior Managing Director, Argand Partners

J Gordon Beckham CHAIR

J. Gordon Beckman

President and CEO of InfoSys McCamish Systems, LLC

James Morgan BOARD MEMBER

Janis Miyasaki BOARD MEMBER

John Thomopoulos BOARD MEMBER

Joshua Raskin BOARD MEMBER

Joshua Raskin

Research Analyst, Nephron Research, an independent research boutique focused on healthcare

Karen Elizabeth Burke

Dermatologist and research scientist on the faculties of Mt. Sinai Medical Center and Cabrini Medical Center

Marcia Mondavi Borger BOARD MEMBER

Marcia Mondavi Borger

Wine industry expert, daughter of wine legend Robert Mondavi, and Co-Founder of Continuum Estate

Marshall Burack BOARD MEMBER

Marshall Burack

Partner at Kopelowitz Ostrow Ferguson Weiselberg

Mary Ellen Garrett BOARD MEMBER

Michael S. Okun

Adelaide Lackner Professor and Chairman of Neurology, University of Florida Co-Director UF Center for Movement Disorders and Neurorestoration

Mindy Mcilroy BOARD MEMBER

Mindy McIlroy

Executive Vice President of Terranova Corporation

Paolo Fresco BOARD MEMBER

Paul H Nathan TREASURER

Peter Goldman BOARD MEMBER

Peter Goldman

Managing Partner, Lakeshore Sport & Fitness

Ponder Harrison BOARD MEMBER

Richard Field

Co-Founder of Lending Tree, LLC

Robert Melzer

Former President and CEO of Property Capital Trust, Boston and former Chair of the Board of Directors, Beth Israel Deaconess Medical Center, Boston

Sarah Brown BOARD MEMBER

Stanley Fahn

H. Houston Merritt Professor of Neurology and Director Emeritus, Division of Movement Disorders, Department of Neurology at the PDF Research Center at Columbia University Medical Center

Stephanie Goldman

Incoming President of the Jewish Federation of Northern New Jersey and member of the Board of Lighthouse International

Stephanie Goldman Rosen BOARD MEMBER

Stephen Ackerman

Executive Director and Financial Advisor, Morgan Stanley Wealth Management

Steve Newton BOARD MEMBER

Timothy A. Pedley

Henry and Lucy Moses Professor of Neurology at Columbia University and past President of the American Academy of Neurology

Travis Howe BOARD MEMBER

Veera Rastogi BOARD MEMBER

William R Moler BOARD MEMBER

Board leadership practices

SOURCE: Self-reported by organization

GuideStar worked with BoardSource, the national leader in nonprofit board leadership and governance, to create this section.

  • Board orientation and education
    Does the board conduct a formal orientation for new board members and require all board members to sign a written agreement regarding their roles, responsibilities, and expectations? yes
  • CEO oversight
    Has the board conducted a formal, written assessment of the chief executive within the past year ? yes
  • Ethics and transparency
    Have the board and senior staff reviewed the conflict-of-interest policy and completed and signed disclosure statements in the past year? yes
  • Board composition
    Does the board ensure an inclusive board member recruitment process that results in diversity of thought and leadership? yes
  • Board performance
    Has the board conducted a formal, written self-assessment of its performance within the past three years? yes

Organizational demographics

Who works and leads organizations that serve our diverse communities? Candid partnered with CHANGE Philanthropy on this demographic section.

Leadership

The organization's leader identifies as:

Race & ethnicity
Decline to state
Sexual orientation
Decline to state
Disability status
Decline to state

Race & ethnicity

Gender identity

Transgender Identity

Sexual orientation

Disability