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Updates from the OI Foundation

Stay up to date with the OI Foundation! To learn more about upcoming events, OIF Conferences, OI research, new resources, OIF programs, and information for the OI community, please visit the OIF Updates page.

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Our mission is to improve the lives of those living with osteogenesis imperfecta through research, education, awareness and mutual support.

The Osteogenesis Imperfecta Foundation, Inc.
(OI Foundation) is the only voluntary national health organization dedicated to helping people cope with the problems associated with osteogenesis imperfecta.

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Research

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Education

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Awareness

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Mutual Support

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The OI Foundation is Here for You

Programs and resources of the OIF help individuals and medical professionals understand osteogenesis imperfecta.

The OIF Information Center offers medically verified factsheets, publications, and videos resources.
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Information Center

View upcoming fundraising events, conferences, and more!

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Upcoming Events

Locate dependable multidisciplinary medical care in your area.
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Clinic Directory

The OI Support Group Program provides a space for sharing, educating, and socializing.
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Support Networks

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Help Move OI Research Forward

Supporting research is an important part of the OI Foundation’s mission.

Participate in OI Studies

Enroll in the OI Registry

OI Publication Library

Take Action

Support the mission of the OI Foundation by raising
OI awareness or hosting a fundraiser.

Raise Awareness

Become A Member

Donate

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Bringing OI community members together at OIF Conferences

OIF Conferences are educational and social experiences for families and individuals living with osteogenesis imperfecta.

OIF National Conference:

Orlando, FL: July 23-26, 2026

OIF Regional Conferences:

Portland, OR: October 11, 2025

Learn more about our conferences ⟶

Latest News & Updates

View all updates ⟶

Recording: OIF Community Call – School-Aged Toolkit

During this call, the OIF introduced and reviewed the Toolkit with Dr. Michelle Fynan. ...

Important Update on the Ultragenyx Clinical Trial

You may have seen information recently on the Ultragenyx results from the Phase 3 ...

2025 Accomplishments

Dear Friend, As 2025 comes to an end, the year has proved to be ...

New Resource: School-Aged Toolkit

The Osteogenesis Imperfecta Foundation is pleased to introduce the School-Aged Toolkit: Information on Caring ...

Recording: BBDC Research Update

BBDC Research Update: NIH Grant Renewal and the future of OI research On Thursday, ...

Participate in Giving Tuesday on 12/2!

Giving Tuesday is a global celebration of generosity that encourages people everywhere to give ...

Helping our community stay up to date and connected.

Please sign up to receive updates from the OI Foundation including our monthly e-Newsletter, research updates, and upcoming event information.

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