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Researcher Renáta Tichá (left) interviewed self-advocates at the ACT State Self-Advocacy Conference in Minneapolis in November 2025.

Making Change: Community Living in the 21st Century

As communities themselves change, how are people with intellectual and other developmental disabilities affected by that change?

“People are telling us how to improve the system and where they need better support. We need to think about a more nimble, flexible service system.”

Learn more about 21st-century community living.

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Marie Green (right) and her brother Jimmy (left). He wears a sports shirt and a hat. Both are smiling.

Becoming Guardian for My Brother Jimmy

When Marie Green became guardian for her brother Jimmy, she saw the importance of a strong support network, especially the staff in his group home. “They are a vital part of his daily life and are basically my eyes and ears since I live across the country,” she writes in Frontline Initiative.

What helps her as a guardian? “Ask questions and be present, create a binder and stay organized, build relationships with support staff, know everyone’s name, and be patient with yourself.”

Learn more about supporting people with disabilities as they age.

A graphic shows several people of different genders and races looking in different directions.

Cultural and Linguistic Competency

The idea of cultural and linguistic competence evolved over time to include the disability context, which calls attention to the disparities that further marginalize people with disabilities from different racial, ethnic, age, and other groups.

“We must challenge ourselves to ask, ‘Who are we excluding?’”

Read about this and other big ideas in Impact.