Having a chronic condition like PsA is hard enough, but trying to figure out how to talk to and communicate with your doctors can also be extremely challenging. Effective communication between you and your doctors is essential to the quality of your health care. It not only fosters a sense of trust and understanding but also helps to empower you to take an active role in managing your health!
I always stress that being your own patient advocate is crucial when you have a chronic condition like psoriatic arthritis. When you are able to clearly express your symptoms and concerns, then doctors can respond to you with clear explanations and empathy. You will also have a better chance of a more accurate diagnosis, appropriate treatment options, and more positive health outcomes.
So how should you as the patient approach your medical appointments? You should always be prepared before your appointments, and be open and honest. Before your visit, it’s extremely helpful to make a list of symptoms, including when they began, their intensity, their frequency, and any factors that worsen or relieve them. I like to use either a notebook for this, or just the notes app on my phone!
Don’t forget that honesty is the best policy. You should be honest about your lifestyle habits, such as your diet, exercise, alcohol use, or smoking, since these details are crucial for diagnosis and treatment planning. Don’t be afraid to be honest and open because you will end up getting better results if you are.
During the consultation, it’s important to speak clearly and ask for clarification when something is not understood. You should not hesitate to express your feelings or fears about your condition or treatment, as emotional health is an important aspect of overall care. I also suggest bringing a trusted friend or family member to the appointment, because it can help you to remember information and they can always ask questions you might forget. You will also feel more comfortable and supported if you have someone you trust with you during your appointments.
Making the Communication Process Smoother
Communication between patients and doctors can be made smoother with a few intentional steps. I find that time constraints during appointments can often make it difficult to cover everything! You should always be prioritizing your most important concerns first. If something regarding your PsA is hurting you or causing you pain, mention it right away and where. Describe how it feels in detail and where the pain is. Believe it or not, the more detailed you can be, the more helpful it is for your doctors. Make sure to write down questions beforehand (be prepared) and bring them to the appointment. Also, taking notes during the visit or asking for written instructions can also help you to remember important information.
Doctors play a vital role in the communication process, too. They should encourage patient questions by creating a welcoming environment, and using plain language rather than medical jargon. Be human, be real, be relatable and down to earth. Doctors should talk to us like we are people, not medical doctors. Talk to us like you care! Don’t gaslight us either. If you are unsure of something a doctor says to you, have them repeat what they said or explain it in a different way. Do not hesitate to ask them to do that. Have them draw a diagram or write down steps for you. As a visual person, I always find pictures to be more informative than just words!
Many doctors also have patient portals available to you, so you can easily contact them to ask questions, ask for medication refills, or read test results. I find the use of patient portals or follow-up emails can really help provide ongoing communication and support after my appointments.
What Questions Should Patients Ask Their Doctors?
To be fully informed and involved in the decision-making process of your PsA care, you should ask questions that help to clarify your condition (diagnosis), treatment options, and expectations. Some important questions to include are:
- What is my diagnosis, and what caused this condition?
- What are my treatment options, and what are the benefits and risks of each?
- How long will the treatment take, and what should I expect while taking it?
- Are there any lifestyle changes I should make to improve my condition?
- What are the possible side effects of the medications or treatments prescribed?
- How will we monitor my progress, and when should I return for a follow-up?
- What signs or symptoms would require immediate medical attention?
- Are there alternative therapies or second opinions I should consider?
Asking these questions will help you to gain a clearer understanding of your health and PsA treatment plan. In addition, you will feel more empowered to make informed decisions alongside your health care providers. Find your voice and speak up during your appointments! If something doesn’t seem right or clear, speak up and say something right away!
Keep in mind that effective patient-to-doctor communication is a two-way process that requires preparation, openness, and mutual respect, especially when you’re dealing with chronic conditions like PsA. When you actively participate by sharing detailed information and asking thoughtful questions, and when doctors provide clear explanations and compassionate listening, the quality of your care will improve significantly.
Remember that good communication helps to build a partnership that supports better health outcomes for you, and a more positive health care experience overall. Never, ever be afraid to speak up for yourself and what you need regarding your PsA treatment.
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